Can Mo. Pass Autism Legislation if its Lawmakers are for Sale?

By Toni Lapp

Rep. Ron Richard

Rep. Ron Richard


As Missourians prepare for another round in the push to pass autism legislation, they might better scrutinize the actions of their lawmakers.

Namely, those of House Speaker Ron Richard, R-Joplin, who successfully scuttled Senate Bill 167 last spring. That legislation would have required insurers to cover up to $55,000 a year for autistic children under 15 to receive Applied Behavior Analysis (ABA) therapy – an effective, evidence-based treatment.
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Missouri Lawmakers Hear Testimony about Autism, Insurance

By Julius Karash

Julius Karash

Julius Karash

Health insurance coverage surfaced as a key issue at a hearing Tuesday by the Missouri House of Representatives Interim Committee on Autism Spectrum Disorders. The 3-hour hearing was held at UMKC School of Medicine.

Much of the testimony, by parents and experts in the field, focused on lack of insurance coverage for therapies such as Applied Behavior Analysis – an effective, evidence-based treatment. ABA treatments are expensive, costing tens of thousands of dollars a year. But the improvements derived from these treatments can save more than $2 million in care and special services over the life of a person with autism.

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KC Rally Presses Issue of Autism Coverage

By Julius Karash

Sen. Eric Schmitt

Sen. Eric Schmitt


Missouri Sen. Eric Schmitt of Glendale said Saturday that he will press on with the fight to obtain health insurance coverage for autism treatments.

“What we’re fighting for with these therapies is the difference between whether or not a dad can take his son to a baseball game, or the difference between whether or not that child can have meaningful friendships with other kids,” Schmitt, the father of a five-year-old boy with autism, said at an autism insurance reform rally at the University of Missouri-Kansas City School of Nursing.
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Cheers for Governor, Jeers for Speaker on Autism Legislation

 By Julius Karash

The St. Louis Post-Dispatch reports that Missouri Gov. Jay Nixon kicked some well-deserving butts on behalf of the autism world today.

Nixon exercised his boots while signing HB 525 and SB 157 along with sponsors Sen. Eric Schmitt, R-Glendale, and Rep. Jeff Grisamore, R-Lee’s Summit. The two bills codify into law existing autism support through five regional centers.
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Autism Leaders Urge Action on Health-Care Reform

AutismVotes

By Toni Lapp

Leaders in the autism community are urging voters to speak up on the health-care debate — specifically, to contact lawmakers who will be key to crafting health-care reform legislation.

“Autism insurance reform can and should be included in the final health care reform bill that President Obama has stated he will sign by the end of October,” writes Elizabeth Emken, vice president of government relations for Autism Speaks, in a blast e-mail to members. “This is the time to end autism insurance discrimination once and for all. Our children have a medical condition which deserves appropriate treatment, therapy and care. Congress needs to know that health care ‘reform’ that fails to stop autism insurance discrimination is unacceptable.”
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JoCo Supporters of Kate’s Law Hold Vigil

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Missouri Governor Announces Support for Autism Legislation

Gov. Jay Nixon marked Autism Awareness month by announcing his strong support last week for the passage of legislation that would require health insurance providers to cover treatments and therapies for Missourians afflicted with autism. Citing the growing number of autism diagnoses, Gov. Nixon called on the legislature to pass a bill that ensures Missourians with health care coverage have access to treatments for autism and related conditions.
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Games to Enhance Turn-Taking, Sportsmanship, Social Skills

By Jeanne Holverstott, M.S.

Q. I read that when Temple Grandin was a young girl, her mother hired a nanny to play turn-taking games with her to improve social skills. What sort of games do you recommend? Are there any that you don’t recommend?

A. After every holiday meal, my family would gather around the dining room table with a game purposefully selected by my mother for this occasion. I remember Taboo, Scattergories, Trivial Pursuit, Outburst. No matter the age of the player, the expectations were the same: follow the rules, win with humility, lose with grace, do your best, and never, ever complain. Games make up the fabric of a childhood and, perhaps, a lifetime, and appropriate game play opens doors to respect, friendship, and fun.

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DEVELOPING TALENTS

Intervene, Intervene, Intervene

By Kate Duffy

A while back, Toni, the SpectrumConnection editor, asked me to write about how far parents should go to help their teens on the spectrum land a job. Since then, several of our Hot Topics parents have shared their kids’ job search stories with me, and I realized there was no easy answer to her question. For the most part, though, their stories revolved around the kids’ inability to accurately read situations, to remember instructions and to multitask to make a deadline. Looking at that list, it sounds like business as usual on the job for most of us — which is why it is so very important that our kids start learning about the world of work as soon as they can.

That’s why the short answer to Toni’s question is this: do what you need to do.

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