‘Landmark’ Autism Guidelines Touted for Missouri

By Toni Lapp

With autism prevalence rising at alarming rates in the United States, the push to make a diagnosis as early as possible has taken on new urgency. On Thursday, Missouri health officials unveiled the state’s first set of guidelines.

A grant by the Missouri Foundation for Health has made the 164-page Missouri Autism Guidelines available for free.

“This is a landmark document for the country, and definitely for our state,” said Michele Kilo, M.D., a developmental pediatrician at Children’s Mercy Hospital who served as one of four primary authors of the guidelines. “We’re hopeful it will be well-used and well-worn.” Missouri is only the second state to issue guidelines, the first state being California in 2001, Kilo said.

The guideline panel — a group of 42 professionals and parents who met over the course of a year — looked carefully at California’s guidelines, but in the end, came up with a completely new set, authors said. Missouri’s recommendations reflect more recent research and is more “state of the art,” said John Mantovani, medical director of St. John’s Mercy Children’s Hospital and Medical Center. “There has been a lot of progress in our understanding of the condition” since 2001, he said.
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Town Hall Meeting Focuses on Needs of Adults with Autism

By Julius Karash

How can we map out better futures for adults with autism? An initiative by Advancing Adults with Autism brought together 1,000 folks at 16 satellite sites as part of a national townhall meeting to discuss the issue.
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KC Rally Presses Issue of Autism Coverage

By Julius Karash

Sen. Eric Schmitt

Sen. Eric Schmitt


Missouri Sen. Eric Schmitt of Glendale said Saturday that he will press on with the fight to obtain health insurance coverage for autism treatments.

“What we’re fighting for with these therapies is the difference between whether or not a dad can take his son to a baseball game, or the difference between whether or not that child can have meaningful friendships with other kids,” Schmitt, the father of a five-year-old boy with autism, said at an autism insurance reform rally at the University of Missouri-Kansas City School of Nursing.
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The Summer Break: A Catch-22?

By Jeanne Holverstott, M.S.

Question: It seems like summer can be full of pitfalls for my son with Asperger’s — the structure has gone away, and he’s no longer in contact with classmates. He is content to play on the computer all day, but seems to get moody more easily. Should we treat summer vacation as a long break from school-year stress, or what?  

Answer: Summer vacation presents a contradiction: Children with autism spectrum disorders thrive on structure, routine, consistency. Summer vacation throws these principles of ASD parenting and behavior management in flux.

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DEVELOPING TALENTS

Intervene, Intervene, Intervene

By Kate Duffy

A while back, Toni, the SpectrumConnection editor, asked me to write about how far parents should go to help their teens on the spectrum land a job. Since then, several of our Hot Topics parents have shared their kids’ job search stories with me, and I realized there was no easy answer to her question. For the most part, though, their stories revolved around the kids’ inability to accurately read situations, to remember instructions and to multitask to make a deadline. Looking at that list, it sounds like business as usual on the job for most of us — which is why it is so very important that our kids start learning about the world of work as soon as they can.

That’s why the short answer to Toni’s question is this: do what you need to do.

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