Plug Pulled on Penn Valley’s ABLE Program

By Toni Lapp
When classes ended at Penn Valley Community College in May, the school laid to rest its ABLE program, another victim of the sour economy, The Kansas City Star reported.

ABLE, an acronym for Academic Bridges for Learning Effectiveness, helps students with learning disabilities — many of whom are on the autism spectrum — navigate the transition to college life. It was founded at Longview Community College and had been in place for 10 years at Penn Valley.
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A Primer for Girls on the Spectrum Entering Middle School

By Toni Lapp

Think back to when you were preparing to make the transition from grade school to middle school (or junior high, if you were like me). Chances are, your social interactions gave you an inkling of what to expect. Perhaps you had older friends who were in upper grades, or maybe you had friends whose older siblings shared advice.

Reading the newly published “Middle School: The Stuff Nobody Tells You About,” I’m reminded of what a jarring change the shift to middle school can be for girls — on and off the spectrum. However, girls on the spectrum are at a natural disadvantage because they often do not have the social circles — and hence, the information shared in these networks — that typical kids have.

Adolescent girls on the spectrum need all the information they can get, and local publisher Autism Asperger Publishing Co. (AAPC) serves it up in this book, written and illustrated by Haley Moss, who at 15, surely knows the material well. Indeed, she tells of attending three different middle schools, switching schools between 6th and 7th grades and 7th and 8th grades.

The author writes with brutal honesty, which any person on the spectrum will appreciate: “The ‘friendship front’ isn’t good for me at all times because of constantly changing friends,” she tells the reader at the outset. Each chapter features advice from her on the selected topic (example: good habits before school starts, changing classes, lockers, and so forth) as well as a teacher’s perspective and advice from other girls on the spectrum.

Here’s a sampling of Haley’s advice:

* On hallway etiquette: “On the way to class, there may be kids who bang into you in the hall. Try to stay cool and don’t hit or push back. In most cases, this is an accident, as the hallways and walkways are crowded with kids rushing to and from classes.”

* On showing off knowledge in class: “Sometimes it is best not to raise your hand at all, even if you know every answer.”

* On friendships: “In addition to friends and acquaintances, there are ‘frenemies.’ These are people who may pretend to be your friends but are mean and talk about you behind your back.”

Haley describes her first day at a new school with great detail, referring to a seatmate from one class as “World History Girl,” and telling of her relief that the girl finds her at lunch. “I don’t know if I can pull this social stuff off,” she writes. “I tend to be shy and a loner, and she is very shy and very self-confident.”

While boys can relate to many aspects of the book, it is intended for girls. Haley talks about the need to keep spare change handy to purchase sanitary napkins, for instance. She also talks of the importance of looking fashionable, so other girls will be nice (and refers more than once to the movie “Mean Girls” as being instructive).

I initially found Haley’s anime-inspired cover illustration to be somewhat out of sync with the topic, until I read in the preface that her mother first told her she had autism by telling her she had magical powers. Indeed, those reading her work may agree.


Modifications to Ease Anxiety at School

By Jeanne Holverstott, M.S.

One of the most common co-morbid conditions within ASD is an anxiety disorder. Whether anxiety is part of the diagnostic make-up of the spectrum or whether anxiety warrants an “additional” diagnosis (hence becoming a co-morbid condition) is akin to the “chicken or the egg” dilemma. Because anxiety rears its ugly head in every way conceivable for individuals with ASD—often in ways beyond the neurotypical’s ability to comprehend—the ways in which schools target anxiety with special education services is critical to success. As most know, to qualify for any special education service that is documented on an Individualized Education Plan (IEP), a student must be medically diagnosed and it must be documented how this diagnosis interferes with his or her ability to learn and function within the school setting.
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Tips for a Successful IEP Meeting

By Toni Lapp

If you’re the parent of a student with an autism-spectrum disorder, you have most likely participated in an individual education program (IEP) meeting for your child.

For many families, the annual meeting is a stressful event in which educators converse using unfamiliar acronyms and bewildering jargon, and parents rubber-stamp their signatures to a document that they don’t understand and didn’t have a hand in developing.

It needn’t be that way.

As the legal education decision maker for the student, parents often do not realize the power that they wield.

As a result, parents may fail to fully exercise their influence at these meetings, says Jeanne Holverstott, an Overland Park autism specialist. Sometimes parents just don’t know what they can ask for.
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A Setback?

By Toni Lapp
I might have bragged too soon about my son’s school progress (see Oct. 24 post). After scoring all A’s and B’s in the first quarter, his grades have plummeted.
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Grade Card Beckons Red-Letter Day

By Toni Lapp
There have been times that I doubted whether my 16-year-old son with Asperger’s, intelligent as he is, would be destined for college. When he reached the age when his teachers started giving out homework, I began receiving notices that assignments had not been turned in. Heck, sometimes I’d get notices that assignments that he’d completed in class hadn’t been turned in; they somehow got lost between his desk to the teacher’s inbox.

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Deconstructing the Meltdown

meltdown

By Toni Lapp
Behavior analyst Baker Wright vividly recalls the first time he was called in to consult on a child with Asperger’s syndrome. A school had referred a sixth-grader for behavioral services because of his disruptive behaviors – ranging from refusal to follow directions to crying and yelling in class.

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Transitioning to a New School Year

By Jeanne Holverstott, M.S.

Question: Do you recommend that parents and students on the autism spectrum take special steps to ease into back-to-school activities?

Answer: For most every school-aged child, August generates mostly positive thoughts amidst the dread of homework, going to bed early, and listening to teachers. You may not know it, but a child with ASD is already anxious about school. Many of my clients have been worried since August 1, weeks before most start school; some because they dislike school, others because they enjoy it. Love or hate, school creates anxiety and anxiety is the breeding ground for much more.
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Teachers: Show Some Compassion for ASD Students

By Toni Lapp
My son’s grade card arrived yesterday. For most parents, the arrival of the end-of-year grades is an occasion to celebrate. I’m just happy if there are no F’s. (It’s sometimes hard to explain this to family and friends: “No, my kid’s not on the honor roll, but he passed all his classes.”)

This year the most heartening news was that Ryan had received high marks in not just one, but two, count ‘em, two classes — Economics and Naval Science (Junior ROTC). Both these classes were led by teachers with whom my son had a good rapport, confirming my belief that behavioral issues are reduced when students on the spectrum have a positive connection with the instructor.
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Question: Is Three a Crowd at IEP Meeting?

By Jeanne Holverstott, M.S.

The setting: A cramped room in a local school building.

The cast: You, teachers, school therapists, the principal, other vaguely familiar faces, and many unknowns.

The mood: Dependent upon whom you ask. For you, the parent: Tense.

The plot: A yearly Individualized Education Plan (IEP) meeting for your son or daughter.


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ASK AN AUTISM SPECTRUM SPECIALIST

The Summer Break: A Catch-22?

By Jeanne Holverstott, M.S.

Question: It seems like summer can be full of pitfalls for my son with Asperger’s — the structure has gone away, and he’s no longer in contact with classmates. He is content to play on the computer all day, but seems to get moody more easily. Should we treat summer vacation as a long break from school-year stress, or what?  

Answer: Summer vacation presents a contradiction: Children with autism spectrum disorders thrive on structure, routine, consistency. Summer vacation throws these principles of ASD parenting and behavior management in flux.

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DEVELOPING TALENTS

Intervene, Intervene, Intervene

By Kate Duffy

A while back, Toni, the SpectrumConnection editor, asked me to write about how far parents should go to help their teens on the spectrum land a job. Since then, several of our Hot Topics parents have shared their kids’ job search stories with me, and I realized there was no easy answer to her question. For the most part, though, their stories revolved around the kids’ inability to accurately read situations, to remember instructions and to multitask to make a deadline. Looking at that list, it sounds like business as usual on the job for most of us — which is why it is so very important that our kids start learning about the world of work as soon as they can.

That’s why the short answer to Toni’s question is this: do what you need to do.

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